While waiting for band #3 and his glasses I thought I would tell you about the Yahoo Plagio Support group. This is a great group of parents all dealing with the ups and downs of plagiocephaly and it's treatment. I joined the group in January 2005 and have since been made a moderator. This is the place to not feel so alone with this issue. There are almost 5000 members ( of course not all active) to help with your questions, listen to your frustrations, help with insurance, and share your progress stories, no matter what type of treatment you are using or thinking about using. We have parents using all brands of bands/helmets, parents doing repo, and parents of graduates who have been through it all and are now there to give advice and comfort. We have a photo section of our beautiful babies to look at, and lots of research articles and help links. You can make contact with other parents in your area or parents using the same facilities. I don't know what I would have done without the wonderful moderators and the members who so warmly opened thier arms to me when I thought I was just going to fall apart. You will find that through your experience ( however great or little it is so far ) you will be able to help others too. I must say Thank You to everyone who have been by my side through this long journey of ours.
THANK YOU!
- THANK YOU!
I would like to thank Cranial Technologies Inc. for allowing me the use of thier pictures and information, along with Plagiocephaly.org, and everyone who made this site possible. - THANK YOU LARRY TYREE
My most sincere thank you to Larry Tyree for my laptop computer which has made my plagio life so much easier. It is now easier to update Dominick's webpage and do my work on the Yahoo Plagio Support Group. I never realized how much I needed it until now. I guess when God answers small prayers it still makes a big difference in your life.
PLAGIOCEPHALY INFO:
- PLAGIOCEPHALY: What is it?
Plagiocephaly is an abnormal headshape caused by any external pressure to the soft infant skull such as, backsleeping, inutero constraint, too much time in a seat,swing, bouncy or carseat. Torticollis and prematurity are also risk factors for plagiocephaly. - PREVENTION
Plagiocephaly can be prevented in many cases with tummy time(supervised play for your infant) and repositioning techniques. If you think your baby may have an abnormal headshape you should see your Pediatrician, as this can also be a sign of craniosynostosis a more serious condition.
QUICK HELP LINKS
- Torticollis Stretching Exercises
Here are the basic stretches for torticollis. Be sure you are doing the stretches for the correct side, either right or left. - Repositioning Techniques
Repositioning is another tool in the prevention and sometimes correction of plagiocephaly. It is also a great tool to use while awaiting treatment with a cranial orthotic. - Tummy Time Brochure from Cranial Technologies Inc.
Learn some basics about tummy time an important tool in prevention of plagiocephaly and torticollis. - Plagio. Headshapes and Severity Assessment Charts
These are the three most common headshapes for plagiocephaly, and the severity assessment charts used by Cranial Technologies Inc.
SENSORY INTEGRATION LINKS
Photo Albums
MORE PHOTO ALBUMS
PLAGIOCEPHALY LINKS
- Cranial Technologies Inc. (DOC Band®).
Cranial Technologies Inc., makers of Domnick's Doc Band. This website has great info. about plagiocephaly and the treatment process using the Doc Band. There is a downloadable Tummy Time brochure, a parents discussion area, and severity assessment charts. A must see when researching for treatment. - Plagiocephaly.org
Plagio.org is a great website with info. on anything and everything to do with plagiocephaly and it's treatment. I reccomend everyone take a look at this site. - Plagiocefalia
Información de Plagiocefalia en español http://translate.google.com/translate_t - Yahoo! Groups : Plagiocephaly
A parent run support group of more than 4000 members for parents of children with plagiocephaly. They are there for support, answers to your questions, help in identifying plagio, insurance info, and repositioning help. This group was a life saver for me. - Yahoo! Groups : Torticolliskids
A support group for children with torticollis. Torticollis is a known cause of plagiocephaly. This where to go if you are dealing with tort. also. - CAPPSKIDS.org
Information on craniosynostosis and plagiocephaly. A wonderful support organization.
PLAGIO PARENT PAGES
- Hannah's Noggin
The story of Hannah and her journey through severe inutero plagiocephaly - Brianna's Story
This is the story of Brianna and her little sister Kiersten, diagnosed with plagiocephaly and torticollis. - Willow's Story
This is the story of Willow. Treated with Cranio Helmet in Germany.
PLAGIOCEPHALY T-SHIRTS AND MORE
- PLAGIOCEPHALY T-SHIRTS AND MORE
Here's where to buy T-shirts and other plagio related items, including graduation bears and now awareness bands. I am in no way affiliated with any of these businesses, but use them often. - Precious Bambino
- CAPPS KIDS ONLINE STORE
WEBRING
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Comments
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Does anyone have any luck with insurance reimburstment for plagiocephaly, we are in the beginning stages with our daughter. I would like to get enough information before filing a claim with BC/BS.
Thank You
Posted by: Read Klos | March 20, 2007 at 04:39 PM