Surgery Day: Well,Dominick had his surgery this morning. They were so good with him. Before the surgery they all came in and talked and played with him so he would know thier faces. The anesthesiologist and his nurse came in and brought one of the masks for him to see and play with(they smell like cherry,lol) and she played with putting it on him and soon he was laughing about it. When it came time they took him and walked down to the surgical suite, he didn't cry.....I waited till they rounded the corner and then lost it. The surgery went well and didn't take long at all. I was sad that we couldn't be there when he woke up, but they said they wanted to do all the yucky stuff (drops,removing IV's) before they brought us in so he could just be comforted. I thought I would just explode between the time we talked with the surgeon and the time we could go to him. When we got to his room, the nurse was holding him and rocking and singing to him. He was really disoriented and mad. They gave him a tylenol supp. and Motrin thru the IV for pain, but he was so upset. The worst part was that he looked at me and cried and when he cries, he cries little bloody tears, it about ripped my heart out. His eyes are really really dialated and they are full of blood, but that is about it. They look so straight already, I can't believe it. Once he is not dialated I will take a picture. His eyes will stay bloody for about two weeks. He slept most of the way home with a few periods of crying but nothing terrible. When he got home he was still disoriented but after sleeping on me for a little while he woke up and saw Anthony and smiled. Then he wanted to eat everything in site,lol. Once he ate he was a whole different baby, much happier. He rubs at his eyes a bit but no real pain problems. He took a nap after a little while,and I fell sound asleep with the monitor in my hand. I was up with Carly last night, still suffering from double ear infections and a sinus infection. I just wish she would eat or drink something. He woke up and I gave him more Motrin, and he was playing with Carly. He is really doing great, now if I can just get used to bloody tears and blood running out of his nose, I'll be ok. We go back in the morning to see the surgeon, so she can go over everything with us and do his follow up. Sorry for the rambly post I am just exhausted. I am going to go pick up something for dinner...no cooking for me tonight. Thanks all for your well wishes, they worked great.
Day Two:Went back for the post op visit this morning. She was very pleased with how straight his eyes were already. And when you put his glasses on they straighten out perfectly so it worked great. We will go back in 6 weeks to see how his vision is. He is still getting his new depth perception so we have to watch him really close. We will watch for any signs of infection and give him Motrin just in case he is still feeling soreness or anything, but all in all the doctor was thrilled with him. I have made a photo album to show his before and after surgery pictures, it is in the sidebar here. Look at how straight those eyes are already.
Day Two Cont: We just got back from the ER with Dom. I was on the computer earlier trying to read posts while he was sleeping and he woke up just screaming. I went to get him and he was on fire. Temp. of 102.5 in the ear. I called the surgeon but of course she was not in, but her nurses told me to go to the ped. Well long story short, ped was double booked already because everyone's kids are sick and there was no way for me to get in, so off to the ER we go. I was so worried it was an infection in his eyes. Dreams of "what if he goes blind came to my head" and I was freaking out. After the usual million hour wait we finally saw the doctor, who found an ear infection. I was never so glad to hear he had an ear infection in my life,lol. They said that because everything is kind of tied together up there, that by messing with his eyes it probably set off an ear infection. We will have to see the ped. in two days to be absolutely sure the antibiotics are doing something, because it could spread into the eyes. The good thing was I was dreading the pharmacy wait with everyone in the United States sick lately, but they gave me a bottle of bubble gum Amoxicillin. I will have to get another one filled but at least I don't have to do it in a hurry. They have him on a strong dosage(around 800mg per day) so hopefully it will knock it out. Meanwhile Carly is doing a bit poorer and is still not eating and barely drinking anything. With all the viruses she has had this makes like three weeks of being sick for her. She has lost about 10 pounds and is really worrying me.
Day Three:Went to the ped. with Dominick and Carly today and it went well. Dom's ear already seems to be responding slightly to the antibiotics, I'm glad I was able to get two doses into him last night and one this morning. Now we just wait him out and watch him close. SHEW!!!! I feel better about him. I am so happy that he looks straight at me now. Carly was seen again and one ear is still full of fluid but not red anymore, but the other is still angry red and looks bad. She is also still all full of stuff in the sinuses, so this ped. ( I don't like the one we had to see last time) said it's time to get tough and put her on Zithromax and a heavy duty combo of cough,antihistamine,decongestant. They have recorded a six pound weight loss over the last two weeks, the other 4 were from the week before and were not recorded(don't ask me why), but he said she eats and drinks by the end of the weekend or we intervine. He is hoping to spare me a hospital stay right now and that the new drugs will get her over this. We have bought any and every food possible, pediasure shakes, and anything that's drinkable,lol. The doctor told her she had to drink no matter what and that she should try and eat, but at least drink three shakes a day. He was very stern with her, but in a very caring way. I think it got through because she has been trying to drink since then, small amounts but better than nothing. She also tried a few pieces of popcorn chicken, but that was about it for now. I'll take it. I've sent Frankie to his friends for the night, Anthony is at his girlfriend's until 10:00 so it is just Carly and Dom for me to deal with. Thanks to everyone who has sent well wishes. Whew, I am just so tired!
Ánimo Carol,lo que te está ocurriendo con tu niña es muy desagradable,pero ella te necesita,ella de mayor estará super orgullosa de tí ,por todo lo que has luchado por ella,ojalá todas las mamás fueran tan luchadoras como lo estás siendo tú con tu Dominick.
Animo y no te rindas,la guapa de tu niña te necesita.
Espero al final todo salga bién,siempre estoy al tanto de los progresos de tu niña.
Un fuerte abrazo para las dos desde España.
Vanesa Millán Gálvez
Posted by: Vanesa Millán Gálvez | March 17, 2006 at 05:46 AM